Sunday, May 23, 2010

It came with a train

I haven't written in a while. Just been too much to even feel like capturing in words. But here's something that just happened five minutes ago. I'm sitting at my desk and she walks up and says, "I need help with something about like this (she makes a shape with her hands indicating about the size of a cereal box) and I think it came in with a train. I'm not sure, but, I'm just not sure what to do. I think there was a train..." And that's all I had to go on.

I asked if there was something I could see and she said yes. I followed her to the bathroom. Before I got there I could hear the exhaust fan running. It's not overhead, like most exhaust fans--it's in the wall, and you can see the world outside when it's running. It makes a lot of noise, so we never use it, but sometimes you hit the switch for it when you turn on the light.

I followed her into the bathroom and automatically turned off the fan switch. She said "Oh! Thank you." So the size she was making with her hands was the size of the fan. And the noise it made was sort of train-like. And it needed to be turned off. But she could not make any of that come out in words.

I went back to work and in a few minutes she was back. She tried to tell me something but couldn't get any words out. She finally said, "Never mind. I can't say it. I've done it before and I'll just do it again. I don't need to bother you."

She went off and was back in a few minutes. She said, "I'm sorry, I can't do it. I need help." I got up and followed her to the bathroom, where the fan was running again. I turned it off again and she thanked me again.

Tuesday, April 27, 2010

What now?

I thought it was going to be a good day. Adam was a happy child walking to school. Ted was downstairs working. I was upstairs working. May was having one of her better days. She'd been upstairs with me all morning, but had gone downstairs with the kind of purposeful look that made me think she was doing laundry or straightening up the kitchen. Then the phone rang and I saw the name of our neighborhood bank in the caller ID. They asked for William or May. I said I was William. They asked if May were in the house. I said she was. There was a long pause. I asked what this was about. They said someone claiming to be May had just been in the bank. I said, just a minute...

I walked downstairs. No May. I told the voice on the phone that May was not in the house. I said she has Alzheimer's. "I thought so," said the voice. "She left the bank. I'll see if we can catch her." I ran over and they had her. She was talking to a personal banker, drinking bank coffee. She saw me and said, "I didn't know where to find you." Well, maybe, but she has been asking me where our money was, was it safe, and could she see it.

We talked and she calmed down. We went to lunch and came back and had a decent afternoon. About 6 o'clock I told her I was going for a walk and did she want to come. She did. As has happened often lately, she pointed things out to me on our walk as if I were a stranger to the neighborhood. Toward the end of the walk she said, "So do you think you'll ever have kids?" I told her I thought I was through having kids. It seemed to bother her to learn that I had kids of my own. She walked quietly for another block and then said, "So are you going to stay around these parts for a while?" I said I was--I was going to stay here and take care of her. She asked me if I thought I would buy a house. I said no, I figured I would keep living with her. "Oh, I don't know about that," she said.

We've had this conversation before, and I usually go straight to the part about our being married, and she usually is happy to hear that. But tonight I thought maybe I could just play along and we'd get back home and she would realize that it was pretty normal to see me there in the house. But we were still a block from the house and the conversation was getting kind of sticky. So I said I was going to stay in the house with her because I was her husband and had been for 30 years.

She stopped dead in her tracks, waved her arms and said, "This is what makes me really, really mad. Why don't people tell me things? This is my life! Why don't I know this?" She cried the rest of the way home, asking "Where was I? How did I miss all this? Did I have friends? What did I do?" And so I said the things I've learned to say to restore her personal history. There was our house on Calder Court. There was the farm, and our dogs Butch and Ariel and your friends Barb and Abby and Becky and Judy and Colleen. There was the house by the river in Washington. There was our apartment by the lake in Chicago where Adam stood in the window and watched the boats. She does remember all those places, and is comforted to hear them named each in its turn.

Every day now is capable of bringing a new surprise. Finding out that she's been at the bank when you were certain she was downstairs is a big one. What now? Where are we in this deal? I think I'll see if the good people at Northwestern can tell me what I need to be doing.

Wednesday, April 21, 2010

Woman? What woman?

Driving home from a psychiatrist appointment, at which May answered every question in a incoherent mumble from a slouched position on the couch, she comes alive for the first time all day and with a mischievous gleam in her eye asks a loaded question:
"You got a girlfriend?"
"What? A girlfriend? Oh, no."
"I don't know, it might be fun."
"No, I don't need a girlfriend."
"You were looking kind of sad the other day and I thought you could use a girlfriend."
"Usually one's wife does not recommend that you get a girlfriend as a cure for sadness."
"Are we married?"
"Yes! You're my wife!"
"Well, well..."

I turn down our alley and as the garage door is opening, she has one more question.
"So who is this woman?"

Tuesday, April 20, 2010

Two time

Sitting in a restaurant at lunch, May tells me to look at those two women across the street. I look and I only see one, and she's just walking along like anyone else. A few minutes later, leaving the restaurant, she calmly remarks, "Everybody is two-headed today." I point to three guys across the way and ask, "Those guys have two heads?" She says they do. Nearly home, there's a woman a block away walking toward us pushing a baby stroller. May says, "I see two women...no...it's one. It's not scary, just a little odd, that's all."

Sunday, April 18, 2010

Panic

To the emergency room tonight. Panic attacks (her, not me). I was afraid we wouldn't make it through the night. Got some little pills that calm her down. Lorazepam. Whoa -- just googled it. Think we'll use it sparingly.

Friday, April 16, 2010

Adam helps his grammy

We're sitting in the living room. May asks me what I do for a living. I say I write speeches. "Oh," she says, "my husband wrote speeches." Adam, who was busy writing out a math problem (Adam has 10 pencils. He found 10 more on the playground. How many pencils does Adam have?) suddenly looks up and says, "He IS your husband!" May stares at him in disbelief. He's right, I say, I am your husband.

Am I your...?

Today's lunch conversation:
Am I your ... oh, I can't, never mind, I lost it...
No, no, finish the sentence. Am...I...your...what?
Are you my...
No, no, this is you talking. Am I your...what?
(she shakes her head in confusion)
Okay, repeat after me: Am I...
Am I...
Your...
Your...
Am I your...what?
Am I your ... your ... wife?
YES! Yes you are!
I am?
Yes.
Since when?
This always blows your mind -- since 30 years ago.
Oh, I'm soooo sorry...
She tells me it's going to take a while for this to sink in. She excuses herself to visit the washroom. She returns and apologizes for asking so many questions, but everything is so new to her and she's trying to make sense of it. I say that's fine, ask away.
So, you and me ... we're brother and sister?
No, husband and wife.
Really? Oh, that's so much better!
Better for you, better for me, and REALLY better for our daughter.
Annie! Is Annie okay?
Annie's fine.
We finish our sandwiches and our cookies and walk out to the car. Halfway home, the questions start again:
I'm sorry to ask so many questions, but I'm still getting used to all this...
That's fine. What do you want to know?
You and me ... we're brother and sister?